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Last night I participated in the first tweetup for the Society of Participatory Medicine. In their words, Participatory Medicine is a cooperative model of health care that encourages and expects active involvement by all connected parties (patients, caregivers, healthcare professionals, etc.) as integral to the full continuum of care. Not surprisingly, this is something with which I firmly agree. I believe in patients as active participants in their own healthcare. I say it all the time - the doctors aren't the ones taking the pills, you are. The issue with pushing for patient "participation" is not everyone is capable of wholly participating in their own healthcare. Sick people are busy being sick. They don't have time to read research papers. While some in the tweetup agreed, two notable exceptions occurred: ""too sick"? -why Patient support groups are key took 4 building the 'plumbing'." "One can't be busy getting well & busy being sick at the same time. The patient has to choose." Sounds like blaming the patient to me.
I had intended to spout on a completely different topic today, but I'll be honest--this insurance business has, to coin a phrase, my dander up. Judging from the majority of comments I've received, I'm not alone.
In this video, I reflect upon society's obsession with looks and how this can be dangerous for both young girls and women with eating disorders. Watch here:
The lies our addiction feeds us can be dangerous, triggering, and something we need to be vigilant of in sobriety. When we get sober it is important to separate the voice of our addiction from our true, authentic voice.
No one can take away your education. I tell that to the cadets where I work all of the time because it is true: I know from my own hard-won education, an ICBS (I Call Bulls*&!) degree, earned via 18 years of mental, emotional and verbal abuse, featuring a well-designed syllabus acted out by my controlling, manipulating, abusive ex. That man was an excellent teacher, but I didn't truly appreciate his lessons until the last years of his course (a.k.a., our marriage). It was a long course. Four times, out of sheer frustration I'm sure, he attempted to physically knock the stupid out of me, but it took that final laying on of hands to make me see the light. I graduated from that abusive experience with the ability to sense abusive bulls*&! from a mile away. Thank you, Ex-Husband, for the education.
I've discussed how I like to use the word "crazy" and don't find it derogatory. Us crazies, we have to stick together, I might say. I've also said that people can use any word to hurt you. Don't tell me you're a secretary. But some people use a mental illness diagnosis as a weapon. Some people insult and abuse with the facts of illness and treatment.
My son, Ben, lives with schizophrenia and was doing well until his recent sudden relapse. Of course, we are doing everything we can to bring Ben back from his first schizophrenia relapse in over six years. The process reminds me of what I believe have been the four cornerstones of Ben's recovery from Schizophrenia - all of which were removed too quickly. Recovery from a mental illness is possible, but only if attention is paid to the human being behind the illness. Watch and let me know what you think.
Sometimes it feels like it has been a long 20 years of living with depression and it's related challenges. Today feels like it's been far too long. I have been lucky enough to experience periods of reprieve, times of fresh perspective and times of stability. I believe I am still in a healthy place despite some major life challenges. But, even with these periods of relative calm and good mental health, there is something ever-present, the fear and stigma of depression.
My son, "Bob," has been diagnosed with bipolar disorder and ADHD. In my post titled "Insurance Companies Are NOT Psychiatrists--Why Are They Making Decisions?," I discussed how my insurance company has decided not to pay for refills of Bob's psychiatric medications - even though his psychiatrist thinks they are necessary for his mental wellness. Your Child with Mental Illness is Being Over-medicated One reader agrees with the insurance company. Why? Concernedmom says he's "over-medicated".
You have had asthma as long as you can remember--since childhood--and have been seeing the same pulmonologist for at least three years. Your doctor has had you on theophylline, a pill you take three times a day, and a Flovent inhaler (which you use twice daily) for the past year. You went to the pharmacy today and dropped off your scripts, as you do every month, only to be told you can't fill them. Why? Because your insurance company won't approve a prescription for more than 60 theophylline. Nor will they fill a Flovent inhaler for more uses than once daily.

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Comments

Anonymous
Hi! I'm 14 and I, for some random reason, always feel the need to hurt myself when I'm mad. I don't even need to be mad at myself, just angry in general. I don't believe that I'm suicidal but I just wanna slap, punch, or cut myself when I'm mad. This has been a feeling that I have felt (When angry) for years now. Even when I was, like, 8 years old. Which is concerning to me. Does anyone else relate or is it just me?
Adam Selvan
I am a man with bipolar and Tourette syndrome, and I take all sorts of medication along with it, so I am not ashamed. I am not afraid of it. We only live day today along with it. We do our best and we strive to succeed.
j
I find Normalizing it the best option as well. I say things like "It's not you - I just have a super-high startle response"
I wish I could control it a bit better but I refuse to beat myself up over it either.
:)
PS
I can relate. I've tried so hard to make my partner, brother and best friend to understand so hard. But everytime they're like," oh it's nothing you're just overthinking" or "you think so negative, just think positive". Seems like the only persons who should understand are the ones, who don't wanna understand.
Seems like I will have to "pretend" to always be happy and cheery even though I don't feel like it, that too in my own house and close places. It's so exhausting and disappointing. I don't even know what to do next!
Mandy Thompson
I am 17 and one of my close friends 14 year old sister made her First Holy Communion this past sunday,May 5th.I went to her party in the afternoon and she was dressed in the traditional,poofy,sleeveless,knee length communion dress and veil with the lace socks and white shoes.She was acting somewhat aloof and didnt seem very happy! I asked my friend why her sister was acting that way and she told me that sis got into trouble the week before and acted like a two year old,so their mom and dad made her wear rubberpants with babyprints on them under her dress as her punishment! She lifted up the front of her sisters dress and showed me,and sure enough she had the babyprint rubberpants on!!